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Steps2Cure NF - Western, NY
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This brand new walk takes place on Saturday, September 29 at Emery Park, Shelter #15 in South Wales, NY. Participants will enjoy a scenic walk around the park loop and hiking trails within this beautiful park.
This is a great opportunity for NF patients, families and friends in the Western New York area to come out and support NF Northeast!
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Some of our 40 Team Leah runners looking good before they depart on their Full or Half Marathon challenge to raise awareness and research funding for NF
Some of Team Leah's walkers from Saturday's 5K - Mitchell Shaw, Marybeth Shaw, Allie Eden, Laurie Eden & Betsey Boss
East Aurora's Sophie Gould looking strong in the 5K!
John Manth's student, Megan Stanley & her mom, Beth, are all smiles after 5K completed for Leah & others w/NF2
Saturday's 5K Run4Leah Team
John Manth congratulates Chantelle Nobis and Anne Patterson on completing the Half Marathon with the Nobis family cheering section, Pete, Amelia, Hayden & Drake from Camden, NY
We are sending out a heartfelt thank you to all of our runners, walkers, volunteers and donors this weekend! Whether you took part in the 5k, half or full marathon, worked the Packet Pick-Up and/or made a donation, we appreciate your time, dedication and generous support of Run4Leah/CureNF. With your help, we have raised over $16,000 and hope to reach our goal of $30,000 as donations are still coming in! (It's not too late to DONATE)
East Aurora High Schoolers, Reagan Kavcic, Maya Mirsky, Keira Kavcic
Julie Mooney, with Terri Devine and Carol Flaherty (volunteer and Half Marathoner!
Laurie Eden, Marybeth Shaw & Kellsie Mack
Megan & Nancy Patterson & Grace Mooney
Packet Pick Up Group Pics :
We couldn't do it without your loving support! THANK YOU!!!
Three more days of training, bonding and even graduating to overnight hotel stays...Dasher has been a very busy service dog and is becoming a true companion. Leah and Linda have been amazed at his level of focus while "on duty and working" and have really enjoyed getting to know him and having fun when he's on break and not working. Dasher LOVES his play time, especially fetch and running free in a fenced in area near the hotel.
Today included a fitting for his service vest and a field trip to the local Mall for more intense training, with Leah as primary handler. They practiced with stairs, elevators, curious Mall patrons and maneuvering in crowds. Dasher did a spectacular job!! He now stays at the hotel each night and they have a full daily training schedule throughout the Memorial Day Weekend!
Leah and Linda send their love to all the CureNF/Run4Leah team members, runners, volunteers, donors, and sponsors participating in our annual fundraising event for NF Northeast through the Buffalo Marathon.
It's been an exciting two days so far for Leah and her Mom, Linda!
They hopped in the car on Sunday and headed to Paws for Ability's training center in Ohio to meet Leah's new service dog, Dasher, and participate in two weeks of intensive bonding and training.
Linda, Leah & Dasher
They spent yesterday getting to know each other and receiving coaching in basic obedience training and rewards. Today they focused on more obedience training and practiced dealing with a lot of distractions as well as proper heeling. Dasher's already feeling a bond with Leah as he had a hard time returning to his trainers at the end of the day and even tried to follow Leah and Linda to their car! Dasher will be very happy when he gets to have his first sleepover at the hotel with Leah & Linda tomorrow night.
Stay tuned in for more updates or drop by the CureNF Expo Booth at the Buffalo Marathon on Saturday and Sunday (5/26 & 5/27) to hear more about Linda, Leah & Dasher's adventure!
It was another successful trip to Capitol Hill for patient advocates representing CureNF and the NF Network. Leah and her mom, Linda Manth, made the journey together with sister, Erin Manth and additional relatives Anne Patterson and Jenny Sawyer. The group representing New York and Georgia joined up with numerous advocates representing Neurofibromatosis patients and families from across the United States as part of the NF Network's annual visit to Washington, D.C. They spent two days meeting with Congressmen and women as well as their staffers, to build awareness about Americans challenged with Neurofibromatosis and formally request continued federal funding for Neurofibromatosis research and treatment options including promising new drug trials.
Help us reach our fundraising goal of $30,000 for NF2 research and awareness.
You can participate:
Be a part of our Memorial Day weekend tradition of raising awareness and funds for Neurofibromatosis Type 2 (NF2)
To Join our Run4Leah Team @ the Buffalo Marathon:
Step 1) Contact our Run4Leah Team Coordinator:
Anne Patterson
run4leah@gmail.com
716-655-3630
Step 2) Register for the Race (you need to do this directly yourself)
https://www.buffalomarathon.com/newregistration/
Step 3) Start Training!
Help our racers reach their suggested fundraising goals: $1000 for Relay Teams and $250 for individual racers!
Secure on-line donations can be made here:
http://www.firstgiving.com/fundraiser/run4leah/2018
For mail in donations:
Make checks payable to "NF Inc., Northeast" Note "Manth/Run4Leah" in the memo line. Please mail checks to David Manth, 2922 Walck Drive, North Tonawanda, NY 14120.
Donations can also be turned in at our Run4Leah/Cure NF Booth during the Buffalo Marathon Expo (at the Convention Center) on Saturday and Sunday!
All donations are tax-deductible and will receive a 501(c)(3) receipt from NF Northeast, Inc.
Dear Run4Leah/CureNF Runners, Volunteers & Donors:
If you have already donated, thank you so much for your generosity in making Run4Leah/Cure NF a success!
MAY is NF Awareness Month and May 6th is Leah's 17th Birthday!
Leah has spent 10 years, more than half her life, dealing with Neurofibromatosis Type 2. NF2 is a genetic neurological condition where tumors develop on nerves, in the brain and/or along the spinal cord. Since being diagnosed ten years ago Leah has endured 13 major surgeries and many more small surgeries and procedures. She is deaf in one ear, has balance issues, facial paralysis and has had a spinal fusion, but none of these things hold her back. Leah is determined not let NF2 define her, or her life, and continues to pursue her many passions; running, hunting, fishing, cooking and spending time with family and friends. Less than two weeks since her last surgical procedure and Leah walked a 5K with her dad John this weekend, to honor her late grandma, Adelaide Manth, who passed away due to cancer and later today, Leah will give an Accordion recital. Not your typical post surgery recovery!!
If you would like to honor Leah for her birthday, or in recognition of May being NF Awareness Month, please consider using the Firstgiving link in the lefthand navigation bar of this blog. Just click "DONATE", and you will be directed to the secure Firstgiving website. All proceeds will go towards NF2 research, hoping for better treatment options for Leah and others living with NF2.
As always, thank you for your support!
