SAVE THE DATE: Sunday May 25, Buffalo Marathon
Calling all runners, donors and volunteers - we need you!
Come join us for a fun day out in downtown Buffalo. Show your support for Leah, by being a part of the Run4Leah/CureNF Team - RUN, WALK, DONATE or VOLUNTEER.
Once again, we are looking for 100 runners/walkers and their avid supporters to help us raise $26,000 for Neurofibromatosis research and awareness. This will be team Run4Leah/CureNF's 7th consecutive year participating in and supporting the Buffalo Marathon with runners, volunteers and race organizers.
HOW TO GET INVOLVED:
To make a secure online donation, http://www.firstgiving.com/fundraiser/run4leah/2014
For mail in donations: Make checks payable to "NF Inc., Northeast" Note "Manth/Run4Leah" in the memo line. Please mail checks to David Manth, 2922 Walck Drive, North Tonawanda, NY 14120. All donations are tax-deductible.
Donations can also be turned in at our Run4Leah/Cure NF Booth during the Buffal Marathon Expo (at the Convention Center) on Sat, May 24th 9am-4pm
To run: email firstname.lastname@example.org or call/text Anne Patterson at 716-949-4838 to receive your free team T-Shirt. All runners are responsible for officially registering for the race at www.buffalomarathon.com
Follow Us On:
Erin, John and Leah had a very successful patient advocacy trip to Capitol Hill in DC, with numerous other members of the National NF Coalition. They ended up having 10 formal meetings with 8 congressional aids and staff members of both NY senators. The trio then continued to accomplish 19 "drop-in" or unscheduled visits and were able to see someone in each of the offices representing NY state. No small feat for two days on The Hill!