An Awesome Weekend of Recovery!
Leah had a restful but eventful weekend. She had visits from the Malerba family on Friday afternoon-had a long nap then a great dinner and came back and crashed. Saturday, her cousin Marissa drove in for the day from Woods Hole, MA. We walked along Beacon Street and hit every toy shop and book shop along the way and cooled off at a local ice cream joint, J P Licks.
Yawkey House for families with children needing away from home medical treatment
Marissa and Leah played chess while Linda organized the books and arts and crafts area at the Yawkey Home where we are staying, then they all played Scattegories, before Marissa left and dropped us at the movies, where we enjoyed Inside Out (a must see for kids and adults if you have not seen it yet). Sunday, Linda and Leah made their way to the Boston Public Library-which was cool in both temperature and atmosphere-we ended up in a "map room" where the interactive map projects, along with a map puzzle occupied them for awhile.
Sunday evening an NF2 researcher, Dr. Ramesh and her husband, (pictured above) took us to a Malaysian restaurant where we had a great meal, that of course ended up at JP Licks again!!
Leah is off of all pain meds, but continues a soft diet, she has been sleeping well and overall feels very well. If she feels well we will venture a bit further from Boston Children's, to Rockport and Glouster with our dear friends the Peluso's. She has a scope Tuesday morning, and if all is well we will head home from there. The biggest risk immediately postop is airway swelling, which we are over. Then the few days after surgery the risks are bleeding and infection-and everyday postop those are less likely.-so far so good.
Thanks for everyone's continued support and prayers-they have all been answered and we cannot thank you all enough!
The Manth Family