It was another successful trip to Capitol Hill for patient advocates representing CureNF and the NF Network. Leah and her mom, Linda Manth, made the journey together with sister, Erin Manth and additional relatives Anne Patterson and Jenny Sawyer. The group representing New York and Georgia joined up with numerous advocates representing Neurofibromatosis patients and families from across the United States as part of the NF Network's annual visit to Washington, D.C. They spent two days meeting with Congressmen and women as well as their staffers, to build awareness about Americans challenged with Neurofibromatosis and formally request continued federal funding for Neurofibromatosis research and treatment options including promising new drug trials.
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